Your Stories Juggling with RA! Some people say that sometimes life throws you off your path and you have to find your way on a new one, I think RA throws you off your path and leaves you clinging to the side of a cliff with no safety gear miles from any path. As I got better I started performing. When I was on […]
Your Stories Learning to walk with Pacerpoles Although I have remained in reasonable health for the past eight years, I do have a problem in that for the past two years I have hardly been able to walk. I hadn’t realised that, for me, using one stick at wrist level is not a particularly good idea. Realising I was so much more […]
News, 16 Sep NRAS Launch RA Awareness Week 2024 The National Rheumatoid Arthritis Society (NRAS) started RA Awareness Week (RAAW) in 2013 with the aim to raise the awareness of the condition by educating and informing friends, family, employers and the general population about what rheumatoid arthritis (RA) is and the devastating impact it can have on people’s lives. This year for RAAW 2024 […]
Your Stories ‘Galloping Grandma’ begins blogging at 70! I was 70 this year and to celebrate; I decided to write a blog about travelling with my rheumatoid arthritis which was actually diagnosed in 2000, although looking back I probably had it much longer. (Visit gallopinggrandma.com) Every joint was feeling terrible, all aches and pains and entering that phase when you convince yourself that it is all psychosomatic, and […]
News, 10 Mar EULAR issue new guidelines for the management of RA The European League Against Rheumatism (EULAR) have issued updated guidelines on the management of RA, which had previously been updated in 2016.
Article Creating Additional Patient Value in RA Pathways Maximising the potential impact of revised pathways of care including remote monitoring digital applications, health apps and patient initiated follow up in Inflammatory Arthritis. Many rheumatology services are reviewing their pathways of care, primarily as a response to dealing with issues resulting from the pandemic. Whilst COVID might be the catalyst for initiating such service […]
Article Friends of Highland Rheumatology Unit (non-NRAS group) The Friends of HRU are a patient led voluntary group for the Highland Rheumatology Unit in Dingwall, set up in 2009. The Highland Rheumatology Unit is a regional and multidisciplinary facility offering 5 inpatient beds for intensive weekly therapy. There is 3 outpatient rooms plus an infusions suite and physiotherapy/ o.t available. We have an […]
Article Cardiovascular risk and RA Guidelines in RA / Cardiovascular Risk During the 2nd Excellence in Rheumatology Conference in Madrid at the end of January 2012, NRAS founder and then CEO Ailsa interviewed Professor of Rheumatology, Ian Bruce (MD FRCP) about questions raised during the patient workshops (about implementation of guidelines and cardiovascular risk) which ran concurrently with the scientific programme and […]
Article Reflections on how COVID has changed the health landscape Reflections on how COVID has changed the health landscape and highlighted the importance of supported self-management By Ailsa Bosworth, MBE As we begin 2022, I’ve taken time out to reflect on what has happened in healthcare delivery generally, but especially within rheumatology, and many of you will be aware that we have produced resources to […]
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