Adult experience of early treatment decision making

Have you been diagnosed with RA or JIA in the last 5 years? We would love to hear and understand your experience


Being diagnosed with a long-term condition such as rheumatoid arthritis (RA) or Juvenile Idiopathic Arthritis (JIA) means that many decisions need to be made during your treatment pathway, particularly about the range of options that are available to you. Young people with JIA over the age of 16 may complete this survey but if you are a parent or guardian of a child under 16 with JIA please complete the specific JIA survey.

We are trying to gather information about the role that healthcare professionals play in influencing your decisions on which treatment is chosen and how much input or influence you have had during your consultations. We are also interested in the impact of RA/JIA on quality of life, and how treatment may help to improve wellbeing. Because we will be asking specific questions about your early consultations when first diagnosed, please only complete this survey if you have been diagnosed within the last 5 years.  

We very much appreciate your time in helping us with this survey.  The following questions should only take about 10-15 minutes to complete. If you cannot answer a question, please skip on to the next one.