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JIA Parent/Career experience of early treatment decision making

Has your child been diagnosed with JIA in the last 8 years? We’d love to hear from you

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Being diagnosed with a long-term condition such as Juvenile Idiopathic Arthritis (JIA) means that many decisions need to be made during a child’s treatment pathway, particularly about the range of options that are available to them.

We are trying to gather information about the role that healthcare professionals play in influencing decisions on which treatment is chosen and how much input or influence you have had during the consultations with your child or the child you care for (referred to throughout as ‘the child’). We are also interested in the impact of JIA and the treatment on quality of life and your understanding and feelings about the diagnosis and treatment.

Please answer based on your own perception of the child’s experience. (Because we will be asking specific questions about your consultations, please only complete this survey if the child has been diagnosed within the last 8 years).

We very much appreciate your time in helping us with this survey.  The following questions should only take about 10-15 minutes to complete.  If you cannot answer a question, please skip on to the next one.