Five new patient organisation leaders to join ABPI Patient Advisory Council

03 April 2023

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Five new patient organisation leaders have been appointed to the ABPI’s Patient Advisory Council, which provides advise and insight on the patient perspective to the ABPI Board and leadership team, to ensure the needs of patients are embedded in all ABPI decision making.

Launched in 2021, the Council comprises a mix of charities which represent a diverse range of disease areas and patient communities.

The new members are:

  • Clare Jacklin, Chief Executive, National Rheumatoid Arthritis Society.
  • Hilary Evans, Chief Executive, Alzheimer’s Research UK.
  • John James, Chief Executive, Sickle Cell Society.
  • Samantha Barber, Chief Executive, Gene People.
  • Sarah Woolnough, Chief Executive, Asthma + Lung UK.

The new cohort will be joining existing members:

  • Sarah Sweeny, Interim Chief Executive, National Voices.
  • Tom Nutt, Chief Executive, Meningitis Now.
  • Nicole Perrin, Chief Executive, the Association Medical Research Charities.

Clare has said: “I am delighted and honoured to be asked to join the ABPI Patient Advisory Council, it is a great opportunity for me to represent the more than 430,000 people with rheumatoid and 12,000 children with juvenile arthritis and it will hopefully ensure that the concerns of those living with all inflammatory arthritis conditions are elevated. I am really looking forward to networking with so many patient organisations and industry representatives.

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