Select topic…Show allAbout NRASCOVID-19Diagnosis and MonitoringDiet and ExerciseHealthcare professionalsResearchSelf CareSymptoms and CausesTreatmentSort byNewest – OldestOldest – Newest News, 19 Jan Imagined Futures Opportunity Are you a young person aged 11-15 with Juvenile Idiopathic Arthritis (JIA)? Are you interested in learning more about filmmaking and storytelling? Join the Imagined Futures project and meet a group of like-minded young people just like you to explore filmmaking, digital storytelling and drama workshops where we will think about identity and your future. We will […] News, 23 Dec COVID-19 Update: Hope on the horizon for immuno-suppressed/compromised individuals December update on COVID-19 anti-viral medications and monoclonal antibody treatments as well as updates on 3rd primary doses and boosters. On 22nd December we hosted a panel discussion on the COVID treatments now available across the UK for those with immune mediated conditions such as RA. Watch the full video below or on our Youtube […] News, 10 Dec Covid update: new treatment Announcement A press release has been issued relating to antiviral treatments for COVID-19. The following two announcements have been made: -There will be an antivirals trial for those testing positive with covid. This will be available to everyone over 50 and those with specific health conditions. Please refer to the link in this article to see […] News, 09 Dec Our brand-new Membership packages have launched! It has taken a lot of hard work behind the scenes to bring you our new and improved packages that puts you, our Members at the forefront of what NRAS can offer. We have received a lot of feedback on what our Members need from their society and we have used this information to create these brand-new Memberships which gives you more […] News, 06 Dec Charities call for government intervention to protect lives from COVID-19 this winter as tens of thousands of people struggle to get vital third primary jab Despite guidance to offer all immunosuppressed patients in England a third primary COVID-19 dose by 11 October, around one in four eligible people with rheumatic conditions are struggling to get access to the jab [1] The Joint Committee on Vaccination and Immunisation (JCVI) recommends three primary COVID-19 vaccine doses for people who are immunosuppressed. A […] News, 06 Dec News from NICE on anti-fibrotic treatment for non-IPF patients NRAS and NICE are pleased to announce that our recent campaign, backed by patients, families and medical experts, to end the inhumane restrictions on a life-extending anti-fibrotic drug for patients with pulmonary fibrosis has been successful. As of 18 October 2021, NICE has agreed that UK doctors will soon be able to prescribe the anti-fibrotic […] News, 03 Dec Covid update on face coverings As we are facing a new strain of covid we urge everyone to stay calm and continue to follow government guidance. Until we have more information on these developments, we encourage everyone to remain vigilant and continue to sanitize. Due to this new strain of covid, new rules have been put in place as a precaution until more information is gathered and assessed. Face covering must now be […] News, 02 Dec The Third Vaccine Patients who are eligible Based on the Joint Committee on Vaccination and Immunisation (JCVI) recommendations, nearly all rheumatology patients (aside from those solely on hydroxychloroquine or sulfasalazine), should receive a third dose of the vaccine. Patients on a dose of Methotrexate lower than 20mg are also not eligible. Read the full independent report by the JCVI here. Who will contact Patients A letter […] News, 02 Dec Ending the Shielding Programme The decision to end shielding At the start of the COVID-19 pandemic, shielding was introduced as one of the few ways to support those who, at the time, were considered clinically extremely vulnerable (CEV). It was the right decision at the time, but we know that shielding advice is extremely restrictive and can have a significant […] News, 03 Nov First rheumatology Covid study published (Telemedicine) from community group surveys. NRAS along with many other patient organisations helped promote this study back in March 2021, the results of which have now been published. Remote consultations:“Perfect for some but disastrous for others”: Patients and clinicians express concerns over phone and video consultations The Covid-19 pandemic necessitated a rapid move by health systems into the digital space […] 1 2 … 24 Next page
News, 19 Jan Imagined Futures Opportunity Are you a young person aged 11-15 with Juvenile Idiopathic Arthritis (JIA)? Are you interested in learning more about filmmaking and storytelling? Join the Imagined Futures project and meet a group of like-minded young people just like you to explore filmmaking, digital storytelling and drama workshops where we will think about identity and your future. We will […]
News, 23 Dec COVID-19 Update: Hope on the horizon for immuno-suppressed/compromised individuals December update on COVID-19 anti-viral medications and monoclonal antibody treatments as well as updates on 3rd primary doses and boosters. On 22nd December we hosted a panel discussion on the COVID treatments now available across the UK for those with immune mediated conditions such as RA. Watch the full video below or on our Youtube […]
News, 10 Dec Covid update: new treatment Announcement A press release has been issued relating to antiviral treatments for COVID-19. The following two announcements have been made: -There will be an antivirals trial for those testing positive with covid. This will be available to everyone over 50 and those with specific health conditions. Please refer to the link in this article to see […]
News, 09 Dec Our brand-new Membership packages have launched! It has taken a lot of hard work behind the scenes to bring you our new and improved packages that puts you, our Members at the forefront of what NRAS can offer. We have received a lot of feedback on what our Members need from their society and we have used this information to create these brand-new Memberships which gives you more […]
News, 06 Dec Charities call for government intervention to protect lives from COVID-19 this winter as tens of thousands of people struggle to get vital third primary jab Despite guidance to offer all immunosuppressed patients in England a third primary COVID-19 dose by 11 October, around one in four eligible people with rheumatic conditions are struggling to get access to the jab [1] The Joint Committee on Vaccination and Immunisation (JCVI) recommends three primary COVID-19 vaccine doses for people who are immunosuppressed. A […]
News, 06 Dec News from NICE on anti-fibrotic treatment for non-IPF patients NRAS and NICE are pleased to announce that our recent campaign, backed by patients, families and medical experts, to end the inhumane restrictions on a life-extending anti-fibrotic drug for patients with pulmonary fibrosis has been successful. As of 18 October 2021, NICE has agreed that UK doctors will soon be able to prescribe the anti-fibrotic […]
News, 03 Dec Covid update on face coverings As we are facing a new strain of covid we urge everyone to stay calm and continue to follow government guidance. Until we have more information on these developments, we encourage everyone to remain vigilant and continue to sanitize. Due to this new strain of covid, new rules have been put in place as a precaution until more information is gathered and assessed. Face covering must now be […]
News, 02 Dec The Third Vaccine Patients who are eligible Based on the Joint Committee on Vaccination and Immunisation (JCVI) recommendations, nearly all rheumatology patients (aside from those solely on hydroxychloroquine or sulfasalazine), should receive a third dose of the vaccine. Patients on a dose of Methotrexate lower than 20mg are also not eligible. Read the full independent report by the JCVI here. Who will contact Patients A letter […]
News, 02 Dec Ending the Shielding Programme The decision to end shielding At the start of the COVID-19 pandemic, shielding was introduced as one of the few ways to support those who, at the time, were considered clinically extremely vulnerable (CEV). It was the right decision at the time, but we know that shielding advice is extremely restrictive and can have a significant […]
News, 03 Nov First rheumatology Covid study published (Telemedicine) from community group surveys. NRAS along with many other patient organisations helped promote this study back in March 2021, the results of which have now been published. Remote consultations:“Perfect for some but disastrous for others”: Patients and clinicians express concerns over phone and video consultations The Covid-19 pandemic necessitated a rapid move by health systems into the digital space […]
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