Patient Views Representative

Are you looking to share your experiences of living with RA or JIA to help others? Are you happy to participate in online meetings? Are you confident sharing experiences, views and opinions with a wider group? Then this may be the role for you!

Our volunteers are integral to our service delivery and help by providing a listening ear, taking part in research projects, raising awareness of RA and JIA and their impact, providing administrative backup and much more. You can be a part of this by becoming a Patient Views Representative (PVR) and help shape research and raise awareness by sharing your personal experience of living with RA or JIA.

About the role

As a Patient Views Representative (PVR), you will represent NRAS and the wider RA/JIA community. Your lived experience can help in many ways and we will work with you to find what suits you best. Your involvement could involve different types of activities, including, but not limited to:

• Supporting patient and public involvement (PPI) research
• Focus Group Participation
• Case Studies & Interviews
• Document & Survey Review
• Product Design Input

To learn more about the role of a PVR, please read the role description here.

Benefits to you

• By contributing and sharing your experiences, you can help improve outcomes for others living with these conditions
• Gain experience in research involvement
• Flexible volunteering that fits around your life and schedule
• Be part of a vibrant research community

What we are looking for

You will have:

• Lived experience of RA or JIA; or
• A family member, carer or guardian of someone living with RA or JIA; and/or
• A healthcare professional working in the RA or JIA community who also meets either of the criteria above.
• Passionate about sharing your lived experiences, whether these be good or bad
• Comfortable speaking about your experiences in a variety of settings
• Good communication skills and willingness to collaborate
• Access to a computer/laptop and a stable internet connection
• Over the age of 18

How do I apply?

Click on the button at the bottom of this page, or visit this link: www.nras.org.uk/volunteering

All volunteers will need to provide references. Depending on the nature of the role, volunteers may also be required to complete a DBS form.