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Resource

Patient Views Representative

Are you looking to share your experience of living with RA to help others?  Are you happy to participate in online meetings? Are you confident sharing your experiences, views and opinions with a wider group? Then this may be the role for you!

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Our volunteers are integral to our service delivery and help by providing a listening ear, taking part in research projects, raising awareness of RA and JIA and their impact, providing administrative backup and much more!  

We are looking for people across the UK to participate on advisory boards and take part in online focus groups. This will be ad-hoc activity and volunteers will chosen according to their suitability for the project, for e.g. if a focus group is researching patient experiences when first diagnosed, newly diagnosed volunteers will be asked if they would like to participate. 

You will receive full training and induction to fulfil this role.

Key activities you will be involved in: 

  • Completing pre-work (eg questionnaires) prior to a focus group or advisory board meeting 
  • Participating in online focus groups or advisory board meetings 
  • Giving feedback on project proposals and creative ideas 

The ideal candidate should be able to commit for a year initially. The hours will vary depending on the project but they will usually be for 2-3 hours per week over the course of the activity. 

Focus groups and advisory board meetings usually take place during in the week, but some may be in the evenings or at weekends. 

  • You will be making a real difference to those people affected by RA
  • You will have an opportunity to engage with respected charity
  • You’ll receive a full induction and training programme
  • Ongoing support and supervision
  • Reimbursement of out-of-pocket expenses as defined in NRAS’s volunteer policy
  • An interest in RA and current treatments and research
  • Ideally able to commit for a year initially. This role will involve 2-3 hours volunteering on an ad hoc basis
  • Access to a computer and phone
  • Confident talking about your experiences of living with RA and expressing your views and opinions

Due to the pandemic all roles are currently home based and virtual but in the future it could be a combination of home based and face-to-face meetings.

Click on the button at the bottom of this page, or visit this link: www.nras.org.uk/volunteering

All volunteers will need to provide references. Depending on the nature of throle, volunteers may also be required to complete a DBS form.