PUBLIC Study Survey04 August 2026 Do you have inflammatory arthritis? Share your understanding of the use of artificial intelligence in clinical research, biobanking and medical datasets via the survey being conducted by Newcastle University Take part in the survey Complete the survey for a chance to win £20 voucher! Simply leave your email at the end to enter the prize draw. The survey is likely to take 10 – 15 minutes to complete and will close mid-October 2026 PUBLIC is a study gathering opinions from people across the UK about how their health data is used in medical research. We want to understand what you think about storing biological samples (like blood) in “biobanks”, using information from your medical records, and the role of new computer technology called Artificial Intelligence (AI) in healthcare and research. This is especially important for those with ongoing conditions like inflammatory arthritis. Your views will help shape future rules and strategies to ensure medical research is done in a way everyone trusts. We’re also interested in how things like your background might affect these opinions. Your participation can help guide researchers and policymakers to handle health data responsibly. Dr Chao Dong, Newcastle University Who can take part You have been invited to take part in this survey as you are aged 18 years or over, and live in the UK. You might also have one or more diagnoses of autoimmune conditions listed below. If you decide to take part, you will be asked to provide us with some more information about yourself, such as your age, gender and ethnicity. This is so that they can include a wide range of people in the research. You could also take part in an interview at a later date for this research study. The survey asks to leave your email if you are interested to be contacted. You have been diagnosed with one or more autoimmune Inflammatory conditions that affect your gut, skin, joints, or liver. This may include (but is not limited to): Inflammatory bowel disease (ulcerative colitis, Crohn’s disease,IBD unclassified, microscopic colitis) Rheumatoid arthritis Spondyloarthritis (ankylosing spondylitis, peripheralspondyloarthritis, axial spondyloarthritis) Psoriasis Eczema Hidradenitis suppurativa Autoimmune hepatitis Primary biliary cirrhosis Primary sclerosing cholangitis Take part in the survey Complete the survey for a chance to win £20 voucher! Simply leave your email at the end to enter the prize draw. The survey is likely to take 10 – 15 minutes to complete and will close mid-October 2026 Who is conducting the study? This study is conducted by Dr Chao Dong, who is a doctor and PhD student at Newcastle University. Her study is funded by NIHR Newcastle Biomedical Research Centre. The findings from the research will be written up and shared. This will be part of a PhD thesis and shared in academic publications, conference presentations, and may be publicised on websites such as the NIHR Newcastle Biomedical Research Centre (BRC) Website or on social media. This will help our research to have the widest reach and impact. You will not be identifiable from the findings. If you decide to take part in an interview, any direct quotations taken from your interview will be anonymised. The study is planned to run until April 2028. If you would like to find out more, please send an email to: chaonan.dong2@newcastle.ac.uk.
Who can take part You have been invited to take part in this survey as you are aged 18 years or over, and live in the UK. You might also have one or more diagnoses of autoimmune conditions listed below. If you decide to take part, you will be asked to provide us with some more information about yourself, such as your age, gender and ethnicity. This is so that they can include a wide range of people in the research. You could also take part in an interview at a later date for this research study. The survey asks to leave your email if you are interested to be contacted.